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H.R. 1389119th CongressReferred to the Committee on Ways and Means, and in addition to the Committee on Energy and Commerce, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

Marriage Equality for Disabled Adults Act

Introduced: Feb 14, 2025
Latest action: Feb 14, 2025

Latest Action

Referred to the Committee on Ways and Means, and in addition to the Committee on Energy and Commerce, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

1
Primary Sponsors
13
Cosponsors
2
Recorded Actions
0
Linked Votes

Plain-English AI Summary

What this bill means

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Official Summary

Official legislative summary associated with this bill.

Marriage Equality for Disabled Adults Act This bill eliminates certain marriage-related criteria for individuals entitled to Social Security child’s benefits and Supplemental Security Income (SSI). Specifically, the bill removes the requirement that individuals receiving Social Security child’s benefits be unmarried. Those eligible for Social Security child’s benefits generally include the minor children of eligible or deceased workers and disabled adult children (the disabled adult children of such workers for whom the onset of disability occurred before age 22). Under current law, child beneficiaries generally lose their benefits upon marriage to an individual who is not also eligible for Social Security benefits. With respect to SSI, the bill removes the requirement that couples who present themselves as married in their community be considered married for purposes of SSI eligibility. The bill also exempts SSI recipients who are disabled adult children, or who marry disabled adult children, from the general requirement that the income or resources of an SSI recipient’s spouse be considered in an eligibility determination. Further, married disabled adult children and their spouses who would otherwise be eligible for Medicaid in a state if they were unmarried must remain eligible for Medicaid regardless of their marriage.

Primary Sponsors

Members listed as primary sponsors of this legislation.

Cosponsors

Members who joined this legislation as cosponsors.

Recorded Actions

Official legislative actions recorded for this measure.

H11100Feb 14, 2025

Referred to the Committee on Ways and Means, and in addition to the Committee on Energy and Commerce, for a period to be subsequently determined by the Speaker, in each case for consideration of such provisions as fall within the jurisdiction of the committee concerned.

Official source ↗
Intro-HFeb 14, 2025

Introduced in House

Official source ↗

Linked Votes

Roll-call votes associated with this legislation.

No roll-call votes are currently linked to this bill.

Lobbying Activity

Federal lobbying disclosures that explicitly identify H.R. 1389. These records show reported lobbying involving the legislation; they do not establish that every member of Congress, sponsor, or voter was personally contacted.

NATIONAL ASSOCIATION OF COUNCILS ON DEVELOPMENTAL DISABILITIES

Registrant: NATIONAL ASSOCIATION OF COUNCILS ON DEVELOPMENTAL DISABILITIES

2nd Quarter (Apr 1 - June 30)
Aug 7, 2026

Reported lobbying issue

Education: ED and Congress urging Department of Ed to be maintained; Full funding for IDEA; District of Columbia: Oppose FMAP cuts for DC Medicaid. Disaster Planning/Emergencies: Support funding for DD Council work in North Carolina and California in support of disaster relief; Health Issues: Support HR 1389, Marriage Equality for Disabled Adults; S 73/HR 1757 - Eliminating the Marriage Penalty in SSI Act (EMPSA); Support HR 7828 - SSI Income Restoration Act (marriage penalty, asset limits; Comment on Centers for Medicare & Medicaid Services Request for Information Related to Comprehensive Regulations to Uncover Suspicious Healthcare (CRUSH); CMS settings rule and urging that it be maintained; Oppose reorganization of HHS; Opposing breaking up the Administration for Community Living (ACL) along with the transfer of the Substance Abuse and Mental Health Services Agency (SAMHSA); Support Autism Family Caregivers Act; Support SSI Savings Penalty Elimination Act; Protect Medicaid (no cuts) in FY26 reconciliation/budget; Comments Opposing delaying the compliance dates for its web and mobile app accessibility rule; support protecting and strengthen Special Supplemental Nutrition Program for Women, Infants, and Children (WIC); Oppose any further cuts or harmful changes to Medicaid through any budget reconciliation or other legislation; Comments opposing and recommending stronger protections for people on Medicaid theMedicaid Community Engagement Requirements Interim Final Rule; Immigration: None Budget/Appropriations: Fiscal Year (FY) 2027 Labor, HHS, Education, and Related Services appropriations bill full funding Disability Programs including DD Act, Department of Education, ACL programs, Early Childhood programs, IDEA, Lifespan Respite, Older Americans Act Programs. Protect Medicaid (no cuts) in FY26 budget/reconciliation; support funding the Special Supplemental Nutrition Program for Women, Infants, and Children (WIC); OMB proposed regulation Proposed Regulation for Federal Financial Assistance [2 CFR 200.205, 200.300, 200.340-200.343, 200.421, 200.450] Civil Rights/Civil Liberties: Support SSI Savings Penalty Elimination Act; Support Home and Community Based Services Access, Support Older Americans Act (OAA) programs to ensure community living. Labor Issues/Antitrust/Workplace: Opposing Restoration of Employment Choice for Adults with Disabilities Act H.R. 8736, ; Support "Raise the Wage Act; Oppose 14C certificates (subminimum wage for people with disabilities); Opposing Restoration of Employment Choice for Adults with Disabilities Act H.R. 8736. Medicare/Medicaid: Protect Medicaid from cuts in the FY26 and FY27 budget/reconciliation; Support Protecting Healthcare and Lowering Costs Act of 2025 to repeal all of the health care provisions in H.R. 1 and make permanent the enhanced Advanced Premium Tax Credits for purchasing marketplace health insurance plans and similar legislation to repeal the harmful cuts to Medicaid included in H.R.1; Recommendations to Medicaid Community Engagement Requirements Interim Final Rule to ensure people will not be removed from Medicaid because of administrative error. Transportation: Protect Medicaid that supports transportation funding in budget/reconciliation.

Government entities reported: Education, Dept of HOUSE OF REPRESENTATIVES SENATE Centers For Medicare and Medicaid Services (CMS) Health & Human Services, Dept of (HHS) Office of Management & Budget (OMB) Labor, Dept of (DOL)

Reported filing-period amount: $12,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

NATIONAL ASSOCIATION OF COUNCILS ON DEVELOPMENTAL DISABILITIES

Registrant: NATIONAL ASSOCIATION OF COUNCILS ON DEVELOPMENTAL DISABILITIES

1st Quarter (Jan 1 - Mar 31)
Jun 3, 2026

Reported lobbying issue

Budget/Appropriations: Fiscal Year (FY) 2027 Labor, HHS, Education, and Related Services appropriations bill full funding Disability Programs including DD Act, Department of Education, ACL programs, Early Childhood programs, IDEA, Lifespan Respite, Older Americans Act Programs. Protect Medicaid (no cuts) in FY26 budget/reconciliation. Civil Rights/Civil Liberties: Support SSI Savings Penalty Elimination Act; Accessibility Standards for Universal Changing Stations; Home and Community Based Services Access, Older Americans Act (OAA), Education: ED and Congress urging Department of Ed to be maintained; Full funding for IDEA; District of Columbia: Oppose FMAP cuts for DC Medicaid. Disaster Planning/Emergencies: Support funding for DD Council work in North Carolina and California in support of disaster relief; Health Issues: Support HR 1389, Marriage Equality for Disabled Adults; S 73/HR 1757 - Eliminating the Marriage Penalty in SSI Act (EMPSA); Support HR 7828 - SSI Income Restoration Act (marriage penalty, asset limits; Comment on Centers for Medicare & Medicaid Services Request for Information Related to Comprehensive Regulations to Uncover Suspicious Healthcare (CRUSH); CMS settings rule and urging that it be maintained; Oppose reorganization of HHS; Opposing breaking up the Administration for Community Living (ACL) along with the transfer of the Substance Abuse and Mental Health Services Agency (SAMHSA); Support Autism Family Caregivers Act; Support SSI Savings Penalty Elimination Act; Protect Medicaid (no cuts) in FY26 reconciliation/budget; Immigration: None Labor Issues/Antitrust/Workplace: Opposing Restoration of Employment Choice for Adults with Disabilities Act H.R. 8736, ; Support "Raise the Wage Act; Oppose 14C certificates (subminimum wage for people with disabilities) Medicare/Medicaid: Protect Medicaid from cuts in the FY26 budget/reconciliation; Support Protecting Healthcare and Lowering Costs Act of 2025 to repeal all of the health care provisions in H.R. 1 and make permanent the enhanced Advanced Premium Tax Credits for purchasing marketplace health insurance plans and similar legislation to repeal the harmful cuts to Medicaid included in H.R.1. Transportation: Protect Medicaid that supports transportation funding in budget/reconciliation.

Government entities reported: Health & Human Services, Dept of (HHS) HOUSE OF REPRESENTATIVES SENATE Education, Dept of White House Office Centers For Medicare and Medicaid Services (CMS) Labor, Dept of (DOL)

Reported filing-period amount: $12,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

CURE SMA

Registrant: CURE SMA

2nd Quarter (Apr 1 - June 30)
Jul 10, 2026

Reported lobbying issue

Health Issues: Research into spinal muscular atrophy, timely access to care, treatments, medical devices, and home and community-based services, Medicaid home care (paid family caregiving & self-directed care), Give Kids a Chance Act (H.R.1261/ S.932- FDA Pediatric Priority Review Voucher Program), DOD Congressionally Directed Medical Research Program & Peer-Reviewed Medical Research Program, Local Coverage Determination related to seat elevation in Group 2 standard power wheelchairs, Labor-Health and Human Services, and Education Appropriations bill, Family Caregiver Awareness, Resources, and Education (CARE) Partnerships Act, Pediatric Palliative Care Homes, National Institute on Disability, Independent Living, and Rehabilitation Research funding, Seat Elevation in Group 2 Non-Complex Power Wheelchairs, Coverage of Standing Systems in Group 3 Power Wheelchair, Competitive Bidding for Tracheostomy, Ostomy and Urological Supplies; FDA Rare Disease Patient Listening Session, Coverage of Respiratory Assist Devices (RADs) and Home Mechanical Ventilators (HMVs), Accelerating Kids Access to Care Act (H.R. 1509/S. 752, National Institutes of Health grant management process & funding; Medicaid home and community-based services, Public Law 119-21 Medicaid Community Engagement Requirements - disability and medically frail definition; Ensuring Patient Access to Critical Breakthrough Products Act (H.R. 5343), Veterans STAND Act (H.R. 6835), Veterans SPORTS Act (S. 3138) Consolidated Appropriations Act of 2026 (P.L. 119-75) Defense: U.S. Department of Defense Peer-Reviewed Medical Research Program Research in Spinal Muscular Atrophy, Funding for Defense Health Research Programs (Congressionally Directed Medical Research Programs and Peer Reviewed Medical Research Program), Medical Research for Our Troops Act (H.R. 3906) Housing: Transportation-HUD Appropriations bill, housing for people with disabilities (Sec. 811 Housing for People with Disabilities, Mainstream Housing Choice Vouchers, & Emergency Housing Vouchers), funding for disability and aging programs Medical/Disease Research/Clinical Labs: medical research in spinal muscular atrophy, development and approval of spinal muscular atrophy treatments, National Institutes of Health funding, U.S. Department of Defense peer reviewed research in spinal muscular atrophy, U.S. Department of Defense Congressionally Directed Medical Research Program funding, Medical Research for Our Troops Act (H.R. 3906) Education: Labor, Health and Human Services, and Education Appropriations bill; IDEA Full Funding Act (H.R.2598/ S.1277), IDEA enforcement and oversight, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement Disaster Planning/Emergencies: Disaster Relief Medicaid Act (H.R.3990/ S.2071), disaster planning and readiness assistance for individuals with disabilities Energy/Nuclear: Maintain Puerto Rico Energy Resilience Fund grants for residents with SMA Budget/Appropriations: National Institutes of Health research into spinal muscular atrophy, U.S. Department of Defense Peer-Reviewed Medical Research in spinal muscular atrophy, Congressionally Directed Medical Research Program funding, Medicaid home and community-based services, housing (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers), Defense Health Research Programs (Congressionally Directed Medical Research Programs), National Institute on Disability, Independent Living, and Rehabilitation Research funding, Labor-HHS-Education Appropriations bill, Transportation-HUD Appropriations bill, Defense Appropriations bill, Department of Education Office of Special Education and Rehabilitative Services staffing, Consolidated Appropriations Act of 2026 (P.L. 119-75), Assistive Technology Act program funding, Access Board funding Civil Rights/Civil Liberties: Supplemental Security Income Savings Penalty Elimination Act (H.R.2540/ S.1234), SSI Restoration Act, disability marriage penalty, Marriage Equality for Disabled Adults Act (H.R. 1389), Eliminating the Marriage Penalty in SSI Act (H.R. 320/ S.73), home and community-based services, Individuals with Disabilities Act (P.L. 101-336), ENABLE Act (H.R.1436/S.627), Seat Elevation in Group 2 Non-Complex Power Wheelchairs, Coverage of Standing Systems in Power Wheelchairs, Adult Changing Tables at U.S. Capitol, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement, Public Law 119-21 Implementation, including disability and medically frail definition for Medicaid Community Engagement Requirement; Veterans STAND Act (H.R. 6835), Veterans SPORTS Act (S. 3138), ABLE Tomorrow Act, the ABLE MATCH Act, and the ABLE Direct Deposit Act Aviation/Airlines/Airports: FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, "Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Rule II, Transportation-HUD Appropriations bill, disability-related air travel complaints & aviation consumer protections Medicare/Medicaid: Medicaid home and community-based services, Medicaid caregiving services, Medicaid funding, 2025 Budget Resolution, durable medical equipment, Pediatric Palliative Care Homes, H.R. 1, Think Differently Database Act (P.L. 118-225), Labor-HHS-Education Appropriations bill, Public Law 119-21 Implementation, including disability and medically frail definition for Medicaid Community Engagement Requirement; Seat Elevation in Group 2 Non-Complex Power Wheelchairs, Coverage of Standing Systems in Group 3 Power Wheelchair, Competitive Bidding for Tracheostomy, Ostomy and Urological Supplies, Local Coverage Determination related to seat elevation in Group 2 standard power wheelchairs, Taxation/Internal Revenue Code: ENABLE Act (H.R.1436/ S.627), Mobility Means Freedom Act (H.R.2320), Achieving a Better Life Experience (ABLE) Act (P.L. 113-295), H.R. 1, ABLE Tomorrow Act, the ABLE MATCH Act, and the ABLE Direct Deposit Act Transportation: FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, Disability Access to Transportation Act, accessibility in community transportation, Automated Vehicle (AV) Deployment and Research, Transportation-HUD Appropriations bill, surface transportation reauthorization, BUILD America 250 Act (H.R. 8870), automated driving system-equipped vehicle federal safety standards

Government entities reported: Centers For Medicare and Medicaid Services (CMS) Defense, Dept of (DOD) Food & Drug Administration (FDA) Health & Human Services, Dept of (HHS) HOUSE OF REPRESENTATIVES Natl Institutes of Health (NIH) Office of Management & Budget (OMB) SENATE Housing & Urban Development, Dept of (HUD) Education, Dept of Federal Emergency Management Agency (FEMA) Homeland Security, Dept of (DHS) Energy, Dept of Transportation, Dept of (DOT) Federal Aviation Administration (FAA) Natl Highway Traffic Safety Administration (NHTSA)

Reported filing-period amount: $75,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

CURE SMA

Registrant: CURE SMA

1st Quarter (Jan 1 - Mar 31)
Apr 1, 2026

Reported lobbying issue

Health Issues: Research into spinal muscular atrophy, timely access to care, treatments, medical devices, and home and community-based services, Give Kids a Chance Act (H.R.1261/ S.932- FDA Pediatric Priority Review Voucher Program), DOD Congressionally Directed Medical Research Program & Peer-Reviewed Medical Research Program, Labor-Health and Human Services, and Education Appropriations bill, Family Caregiver Awareness, Resources, and Education (CARE) Partnerships Act, Pediatric Palliative Care Homes, National Institute on Disability, Independent Living, and Rehabilitation Research funding, Seat Elevation in Group 2 Non-Complex Power Wheelchairs, Coverage of Standing Systems in Group 3 Power Wheelchair, Competitive Bidding for Tracheostomy, Ostomy and Urological Supplies; FDA Rare Disease Patient Listening Session, Coverage of Respiratory Assist Devices (RADs) and Home Mechanical Ventilators (HMVs), Accelerating Kids Access to Care Act (H.R. 1509/S. 752, National Institutes of Health funding; Medicaid home and community-based services, Public Law 119-21 Medicaid Community Engagement Requirements - disability and medically frail definition; Ensuring Patient Access to Critical Breakthrough Products Act (H.R. 5343), Veterans STAND Act (H.R. 6835), Veterans SPORTS Act (S. 3138) Consolidated Appropriations Act of 2026 (P.L. 119-75) Budget/Appropriations: National Institutes of Health research into spinal muscular atrophy, U.S. Department of Defense Peer-Reviewed Medical Research in spinal muscular atrophy, Congressionally Directed Medical Research Program funding, Medicaid home and community-based services, housing (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers), Defense Health Research Programs (Congressionally Directed Medical Research Programs), National Institute on Disability, Independent Living, and Rehabilitation Research funding, Labor-HHS-Education Appropriations bill, Transportation-HUD Appropriations bill, Defense Appropriations bill, Department of Education Office of Special Education and Rehabilitative Services staffing, Consolidated Appropriations Act of 2026 (P.L. 119-75), Assistive Technology Act program funding, Access Board funding Civil Rights/Civil Liberties: Supplemental Security Income Savings Penalty Elimination Act (H.R.2540/ S.1234), SSI Restoration Act, disability marriage penalty, Marriage Equality for Disabled Adults Act (H.R. 1389), Eliminating the Marriage Penalty in SSI Act (H.R. 320/ S.73), home and community-based services, Individuals with Disabilities Act (P.L. 101-336), ENABLE Act (H.R.1436/S.627), Seat Elevation in Group 2 Non-Complex Power Wheelchairs, Coverage of Standing Systems in Power Wheelchairs, Adult Changing Tables at U.S. Capitol, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement, Public Law 119-21 Implementation, including disability and medically frail definition for Medicaid Community Engagement Requirement; Veterans STAND Act (H.R. 6835), Veterans SPORTS Act (S. 3138), ABLE Tomorrow Act, the ABLE MATCH Act, and the ABLE Direct Deposit Act Aviation/Airlines/Airports: FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, "Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Rule II, Transportation-HUD Appropriations bill, disability-related air travel complaints & aviation consumer protections Defense: U.S. Department of Defense Peer-Reviewed Medical Research Program Research in Spinal Muscular Atrophy, Funding for Defense Health Research Programs (Congressionally Directed Medical Research Programs and Peer Reviewed Medical Research Program), Medical Research for Our Troops Act (H.R. 3906) Housing: Transportation-HUD Appropriations bill, housing for people with disabilities (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers), funding for disability and aging programs Medical/Disease Research/Clinical Labs: medical research in spinal muscular atrophy, development and approval of spinal muscular atrophy treatments, National Institutes of Health funding, U.S. Department of Defense peer reviewed research in spinal muscular atrophy, U.S. Department of Defense Congressionally Directed Medical Research Program funding, Medical Research for Our Troops Act (H.R. 3906) Medicare/Medicaid: Medicaid home and community-based services, Medicaid caregiving services, Medicaid funding, 2025 Budget Resolution, durable medical equipment, Pediatric Palliative Care Homes, H.R. 1, Think Differently Database Act (P.L. 118-225), Labor-HHS-Education Appropriations bill, Public Law 119-21 Implementation, including disability and medically frail definition for Medicaid Community Engagement Requirement Taxation/Internal Revenue Code: ENABLE Act (H.R.1436/ S.627), Mobility Means Freedom Act (H.R.2320), Achieving a Better Life Experience (ABLE) Act (P.L. 113-295), H.R. 1, ABLE Tomorrow Act, the ABLE MATCH Act, and the ABLE Direct Deposit Act Transportation: FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, Disability Access to Transportation Act, accessibility in community transportation, Automated Vehicle (AV) Deployment and Research, Transportation-HUD Appropriations bill, surface transportation reauthorization Education: Labor, Health and Human Services, and Education Appropriations bill; IDEA Full Funding Act (H.R.2598/ S.1277), IDEA enforcement and oversight, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement Disaster Planning/Emergencies: Disaster Relief Medicaid Act (H.R.3990/ S.2071), disaster planning and readiness assistance for individuals with disabilities

Government entities reported: Centers For Medicare and Medicaid Services (CMS) Defense, Dept of (DOD) Food & Drug Administration (FDA) Health & Human Services, Dept of (HHS) HOUSE OF REPRESENTATIVES Natl Institutes of Health (NIH) SENATE Housing & Urban Development, Dept of (HUD) Transportation, Dept of (DOT) Education, Dept of Federal Emergency Management Agency (FEMA) Homeland Security, Dept of (DHS)

Reported filing-period amount: $75,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

CURE SMA

Registrant: CURE SMA

4th Quarter (Oct 1 - Dec 31)
Jan 13, 2026

Reported lobbying issue

Health Issues: Research into spinal muscular atrophy, timely access to care, treatments, medical devices, and home and community-based services, Give Kids a Chance Act (H.R.1261/ S.932- FDA Pediatric Priority Review Voucher Program), H.R. 1, DOD Peer-Reviewed Medical Research Program, Labor-Health and Human Services, and Education Appropriations bill, Family Caregiver Awareness, Resources, and Education (CARE) Partnerships Act, Pediatric Palliative Care Homes, Advisory Committee on Heritable Disorders in Newborns and Children, National Institute on Disability, Independent Living, and Rehabilitation Research funding, Coverage of Standing Systems in Group 3 Power Wheelchair, Competitive Bidding for Tracheostomy, Ostomy and Urological Supplies; FDA Rare Disease Patient Listening Session, Coverage of Respiratory Assist Devices (RADs) and Home Mechanical Ventilators (HMVs), Accelerating Kids Access to Care Act (H.R. 1509/S. 752, National Institutes of Health funding; Medicaid home and community-based services, Public Law 119-21 Medicaid Community Engagement Requirements - disability and medically frail definition Budget/Appropriations: 2025 Budget Resolution, National Institutes of Health research into spinal muscular atrophy, U.S. Department of Defense Peer-Reviewed Medical Research in spinal muscular atrophy, Medicaid home and community-based services, housing (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers), Defense Health Research Programs (Congressionally Directed Medical Research Programs), National Institute on Disability, Independent Living, and Rehabilitation Research funding, Labor-HHS-Education Appropriations bill, Transportation-HUD Appropriations bill, Defense Appropriations bill, Department of Education Office of Special Education and Rehabilitative Services staffing, Congressionally Directed Medical Research Program funding Civil Rights/Civil Liberties: Supplemental Security Income Savings Penalty Elimination Act (H.R.2540/ S.1234), disability marriage penalty, Marriage Equality for Disabled Adults Act (H.R. 1389), Eliminating the Marriage Penalty in SSI Act (H.R. 320/ S.73), home and community-based services, Individuals with Disabilities Act (P.L. 101-336), ENABLE Act (H.R.1436/S.627), Coverage of Standing Systems in Power Wheelchairs, Adult Changing Tables at U.S. Capitol, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement, Public Law 119-21 Medicaid Community Engagement Requirements - disability and medically frail definition Aviation/Airlines/Airports: FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, "Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Rule II, Transportation-HUD Appropriations bill Defense: U.S. Department of Defense Peer-Reviewed Medical Research Program Research in Spinal Muscular Atrophy, Defense Health Research Programs (Congressionally Directed Medical Research Programs), Medical Research for Our Troops Act (H.R. 3906) Housing: Transportation-HUD Appropriations bill, housing for people with disabilities (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers) Medical/Disease Research/Clinical Labs: medical research in spinal muscular atrophy, National Institutes of Health funding, U.S. Department of Defense peer reviewed research in spinal muscular atrophy, U.S. Department of Defense Congressionally Directed Medical Research Program, Medical Research for Our Troops Act (H.R. 3906) Medicare/Medicaid: Medicaid home and community-based services, Medicaid caregiving services, Medicaid funding, 2025 Budget Resolution, durable medical equipment, Pediatric Palliative Care Homes, H.R. 1, Think Differently Database Act (P.L. 118-225), Labor-HHS-Education Appropriations bill, Public Law 119-21Medicaid Community Engagement Requirements Taxation/Internal Revenue Code: ENABLE Act (H.R.1436/ S.627), Mobility Means Freedom Act (H.R.2320), Achieving a Better Life Experience (ABLE) Act (P.L. 113-295), H.R. 1 Transportation: FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, Disability Access to Transportation Act, accessibility in community transportation, Automated Vehicle (AV) Deployment and Research, Transportation-HUD Appropriations bill Education: Labor, Health and Human Services, and Education Appropriations bill; IDEA Full Funding Act (H.R.2598/ S.1277), IDEA enforcement and oversight, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement Disaster Planning/Emergencies: Disaster Relief Medicaid Act (H.R.3990/ S.2071), disaster planning and readiness assistance for individuals with disabilities

Government entities reported: Centers For Medicare and Medicaid Services (CMS) Defense, Dept of (DOD) Food & Drug Administration (FDA) Health & Human Services, Dept of (HHS) HOUSE OF REPRESENTATIVES Natl Institutes of Health (NIH) SENATE Housing & Urban Development, Dept of (HUD) Transportation, Dept of (DOT) Education, Dept of Federal Emergency Management Agency (FEMA) Homeland Security, Dept of (DHS)

Reported filing-period amount: $75,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

CURE SMA

Registrant: CURE SMA

3rd Quarter (July 1 - Sep 30)
Oct 16, 2025

Reported lobbying issue

Health Issues: Research into spinal muscular atrophy, timely access to care, treatments, medical devices, and home and community-based services, Give Kids a Chance Act (H.R.1261/ S.932- FDA Pediatric Priority Review Voucher Program), H.R. 1, DOD Peer-Reviewed Medical Research Program, Labor-Health and Human Services, and Education Appropriations bill, Family Caregiver Awareness, Resources, and Education (CARE) Partnerships Act, Pediatric Palliative Care Homes, Advisory Committee on Heritable Disorders in Newborns and Children, National Institute on Disability, Independent Living, and Rehabilitation Research funding, Coverage of Standing Systems in Group 3 Power Wheelchair, Competitive Bidding for Tracheostomy, Ostomy and Urological Supplies; FDA Rare Disease Patient Listening Session, Coverage of Respiratory Assist Devices (RADs) and Home Mechanical Ventilators (HMVs), Accelerating Kids Access to Care Act (H.R. 1509/S. 752, National Institutes of Health funding Budget/Appropriations: 2025 Budget Resolution, National Institutes of Health research into spinal muscular atrophy, U.S. Department of Defense Peer-Reviewed Medical Research in spinal muscular atrophy, Medicaid home and community-based services, housing (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers), Defense Health Research Programs (Congressionally Directed Medical Research Programs), National Institute on Disability, Independent Living, and Rehabilitation Research funding, Labor-HHS-Education Appropriations bill, Transportation-HUD Appropriations bill, Defense Appropriations bill Civil Rights/Civil Liberties: Supplemental Security Income Savings Penalty Elimination Act (H.R.2540/ S.1234), disability marriage penalty, Marriage Equality for Disabled Adults Act (H.R. 1389), Eliminating the Marriage Penalty in SSI Act (H.R. 320/ S.73), home and community-based services, Individuals with Disabilities Act (P.L. 101-336), ENABLE Act (H.R.1436/S.627), Coverage of Standing Systems in Power Wheelchairs, Adult Changing Tables at U.S. Capitol Aviation/Airlines/Airports: FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, Transportation-HUD Appropriations bill Defense: U.S. Department of Defense Peer-Reviewed Medical Research Program Research in Spinal Muscular Atrophy, Defense Health Research Programs (Congressionally Directed Medical Research Programs), Medical Research for Our Troops Act (H.R. 3906) Housing: Transportation-HUD Appropriations bill, housing for people with disabilities (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers) Medical/Disease Research/Clinical Labs: medical research in spinal muscular atrophy, National Institutes of Health funding, U.S. Department of Defense peer reviewed research in spinal muscular atrophy, Medical Research for Our Troops Act (H.R. 3906) Medicare/Medicaid: Medicaid home and community-based services, Medicaid funding, 2025 Budget Resolution, durable medical equipment, Pediatric Palliative Care Homes, H.R. 1, Think Differently Database Act (P.L. 118-225), Labor-HHS-Education Appropriations bill Taxation/Internal Revenue Code: ENABLE Act (H.R.1436/ S.627), Mobility Means Freedom Act (H.R.2320), Achieving a Better Life Experience (ABLE) Act (P.L. 113-295), H.R. 1 Transportation: FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, Disability Access to Transportation Act, accessibility in community transportation, Transportation-HUD Appropriations bill Education: Labor, Health and Human Services, and Education Appropriations bill; IDEA Full Funding Act (H.R.2598/ S.1277), IDEA enforcement and oversight Disaster Planning/Emergencies: Disaster Relief Medicaid Act (H.R.3990/ S.2071), disaster planning and readiness assistance for individuals with disabilities

Government entities reported: Centers For Medicare and Medicaid Services (CMS) Defense, Dept of (DOD) Food & Drug Administration (FDA) Health & Human Services, Dept of (HHS) HOUSE OF REPRESENTATIVES Natl Institutes of Health (NIH) SENATE Housing & Urban Development, Dept of (HUD) Transportation, Dept of (DOT) Education, Dept of Federal Emergency Management Agency (FEMA) Homeland Security, Dept of (DHS)

Reported filing-period amount: $75,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

EDISON ELECTRIC INSTITUTE

Registrant: MISSY EDWARDS STRATEGIES, LLC

1st Quarter (Jan 1 - Mar 31)
Apr 20, 2025

Reported lobbying issue

Budget/Appropriations: Infrastructure Investment and Jobs Act; H.R. 10445- the Further Continuing Appropriations and Disaster Relief Supplemental Appropriations Act; H.R. 9028, Transportation, Housing and Urban Development, and Related Agencies Act, 2025; H.R. 8997, Agriculture, Rural Development, Food and Drug Administration, and Related Agencies Act, 2025; H.R. 8997, Energy and Water Development and Related Agencies Act, 2025; H.R. 8773, Financial Services and General Government Act, 2025; H.R. 8998, Department of Interior, Environment, and Related Agencies Act, 2025; H.R. 8580, Military Construction, Veterans Affairs, and Related Agencies Act, 2025; H.R. 8772, Legislative Branch Appropriations Act, 2025; H.R. 9026, Commerce, Justice, Science, and Related Agencies Act, 2025; H.R. 9029, Departments of Labor, Health and Human Services, and Education, and Related Agencies Act, 2025; H.R. 8752, Department of Homeland Security Act, 2025; H.R. 8774, Department of Defense Act, 2025; H.R. 9494, Continuing Appropriations and Other Matters Act, 2025; Energy R&D funding; Disaster supplemental funding general Energy/Nuclear: S.4753 - Energy Permitting Reform Act of 2024; S. 2651, the SITE Act; S. 1456, the SPUR Act; S. 1399, the Building American Energy Security Act; S. 1521, Community and Hydropower Improvement Act; S.914, Energy Threat Analysis Center Establishment Act; H.R. 4505, the Hydropower Clean Energy Future Act; H.R. 6747, the Clean Electricity and Transmission Acceleration Act; H.R. 6185, the GRID Act; PEER Act discussion draft; H.R. 6747, Clean Electricity and Transmission Acceleration Act; S. 2827, BIG WIRES; S. 4027, the SPEED and Reliability Act; H.R.1389, GRID Act; S. 4719/H.R. 1389- Guaranteeing Resilient Installations for Defense (GRID) Act of 2024; H.R. 5075, Ethics in Energy Act; H.R. 7624/S. 3918, the Advancing GETs Act; H.R.7171/S. 3627, Distribution Transformer Efficiency and Supply Chain Reliability Act of 2024 H.R. 2864, Countering CCP Drones Act H.R. 8416 - Drones for First Responders Act; H.R. 9083- SECURE Grid Act; American Privacy Rights Act; S. 4664- Department of Energy AI Act; Energy storage generally; Minimum transfer capability; Federal Power Act; Artificial intelligence issues generally; Load growth, reliability, and resource adequacy generally; Data center issues generally; National Interest Electric Transmission Corridors; Nuclear issues generally; Draft legislation related to electric sector emissions reductions; Draft legislation related to offshore wind; Draft legislation related to public safety power shutoffs; Hydrogen policy generally; Electricity transmission and distribution infrastructure generally; Electric transmission policy; Clean energy issues generally; Clean energy technologies generally; Energy storage issues generally; Energy efficiency issues generally; FERC Orders 1920, 2022, 2023; 1977; FERC nominees; FERC issues generally; Offshore wind issues generally; Issues related to energy grid supply chain; Hydropower licensing and re-licensing; Hydrogen policy generally; Draft legislation related to cybersecurity; Draft legislation related to security and data; Distribution transformers Defense: FY25 National Defense Authorization Act. Environment/Superfund: H.R. 1, the Lower Energy Costs Act; H.R. 7023, the Creating Confidence in Clean Water Permitting Act S. 1449, the RESTART Act; H.R. 1577, the Builder Act; H.R. 3746, the Fiscal Responsibility Act; H.J.Res.163/S.J.Res.92 related to EPA regulations; H.J.Res.152/S.J.Res.95 related to CCR regulations; H.R. 10523- Federal Wildfire Relief Act of 2024; H.R. 8790- the Fix Our Forest Act; H.R. 6012 Fire Safe Electric Corridors Act of 2023; S.2269 Fire Safe Electric Corridors Act of 2023; S. 4628 Enhancing Mitigation and Building Effective Resilience Act; S. 4343 Fire Ready Nation; H.R. 8656 Modernizing Wildfire Safety and Prevention Act of 2024; S. 4191 Regional Leadership in Wildland Fire Research Act; HR 9533, the Endangered Species Act Amendments Act Draft legislation on virtual power plants Conservation regulations at the Bureau of Land Management; Wildfires and other natural disasters; EPA regulations on Clean Air Act Section 111 d and b; EPA regulations generally; Good Neighbor Rule; Coal combustion residuals; Effluent Limitation Guidelines; Draft legislation related to the Federal Permitting Improvement Steering Council; Federal Permitting Improvement Steering Council; Rights-of-way; Categorical exclusions; Siting and permitting generally; National Environmental Policy Act; Clean Water Act generally; Endangered Species Act generally; National Historic Preservation Act generally; Water Resources Development Act generally; Clean Air Act generally Homeland Security: S.1631 - Safeguarding the Homeland from the Threats Posed by Unmanned Aircraft Systems Act of 2023; H.R. 8610 - Counter-UAS Authority Security, Safety, and Reauthorization Act; Counter-UAS legislation; S. 4630 - Streamlining Federal Cybersecurity Regulations Act; H.R. 9768- Joint Cyber Defense Collaborative Act; H.R. 976 - Strengthening Cyber Resilience Against State- Sponsored Threats Act; Cyber incident reporting generally; Cyber regulatory harmonization generally Taxation/Internal Revenue Code: H.R. 5803/S. 1793, the Grid Resiliency Tax Credit Act; H.R. 3746, the Fiscal Responsibility Act; H.R.5376, Inflation Reduction Act of 2022; H.R. 7024, the Tax Relief for American Families and Workers Act; H.R. 3938, Build It in America Act; Resiliency issues generally; Distribution transformer issues generally; Transmission and distribution issues generally; Tax Cuts and Jobs Act issues generally; Inflation Reduction Act Implementation. Transportation: Alternative fuel transit and school buses generally; Alternative fuel vehicles and related infrastructure generally; FAA Reauthorization; Supply chain issues generally; Public and commercial fleets and related infrastructure; Infrastructure Investment & Jobs Act Implementation. Telecommunications: S. 4207 - Spectrum and National Security Act of 2024; Pole Attachments generally; FCC Spectrum Auction Reauthorization draft legislation; Telecom issues generally; 811 locate services issues generally.

Government entities reported: HOUSE OF REPRESENTATIVES SENATE

Reported filing-period amount: $30,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

ARC OF THE UNITED STATES

Registrant: THE ARC OF THE UNITED STATES

2nd Quarter (Apr 1 - June 30)
Jul 20, 2026

Reported lobbying issue

Agriculture: H.R.7567 - Farm, Food, and National Security Act of 2026. Taxation/Internal Revenue Code: Disabled Access Tax Credit reform legislation Transportation: S.4829/H.R.9373 -- Air Carrier Access Amendments Act Budget/Appropriations: L-HHS-ED appropriations for FY 2027; Continuing Resolution and Extensions Act 2025; American Jobs and Families Plans, (P.L. 117-2) all provisions dealing with human services and employment for people with disabilities; Request for comment on a proposed regulation on federal financial assistance (Fed. Reg. Vol. 91, No. 103). Health Issues: Funding for long-term supports and services workforce; Expanding access to health care; Supporting a comprehensive approach to health care; Creating supports and services for people with developmental disabilities across the lifespan; H.R.1520 - Charlotte Woodward Organ Transplant Discrimination Prevention Act. Labor Issues/Antitrust/Workplace: Disability community concerns regarding employment; AbilityOne Reform; H.R.8736 -- Restoration of Employment Choice for Adults with Disabilities Act; S.2438/H.R.4771 -- Transformation to Competitive Integrated Employment Act. Medicare/Medicaid: HCBS Access Act, a bill to increase access to Medicaid home and community-based services; Work with CMS to implement Medicaid provisions in PL 119-21; Responding to a CMS request for information regarding waste, fraud, and abuse; Responding to a CMS request for comments regarding work requirements in PL 119-21; Responding to CMS request for comments regarding State Directed Payments in PL 119-21; Educating Congress regarding the need to reauthorize the Money Follows the Person Act. Retirement: Improvements to Social Security Act Title II and Title XVI for people with disabilities; Supplemental Security Income program issues, provisions dealing with persons with disabilities; Social Security Disability program issues, provisions dealing with persons with disabilities; S.1234/H.R.2540 - SSI Savings Penalty Elimination Act; H.R.8884 - Removing Barriers to Work for Disabled Americans Act; Work Without Worry Act; H.R.930 - Stop the Wait Act of 2025; S.3924 - We Cant Wait Act; H.R.1389 - Marriage Equality for Disabled Adults Act; S.4001/H.R.7828 - SSI Restoration Act. Civil Rights/Civil Liberties: Deinstitutionalization and community integration; Disability rights in emergency situations; Ensuring accessible voting; Electrical Stimulation Shock Devices- FDA Final Rule; H.R. 6453- ADA 30 Days to Comply Act. Education: IDEA Funding; Changes and Restructuring of The U.S. Department of Education; Federal School Vouchers; Restraint and Seclusion; (H.R. 6617/ S. 3448) Keeping All Students Safe Act; (H.R. 6052/S. 3121) 21st Century Dyslexia Act; (H.R. 9289/ S. 4297) Keep Public Funds in Public Schools Act; (H.R. 2598/ S. 1277) IDEA Full Funding Act. Housing: Proposed HUD work requirements and term limits; Inclusive housing design legislation.

Government entities reported: Agriculture, Dept of (USDA) HOUSE OF REPRESENTATIVES SENATE Centers For Medicare and Medicaid Services (CMS) Health & Human Services, Dept of (HHS) Labor, Dept of (DOL) Social Security Administration (SSA) Food & Drug Administration (FDA) Education, Dept of Housing & Urban Development, Dept of (HUD)

Reported filing-period amount: $50,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

ARC OF THE UNITED STATES

Registrant: THE ARC OF THE UNITED STATES

1st Quarter (Jan 1 - Mar 31)
Apr 20, 2026

Reported lobbying issue

Budget/Appropriations: L-HHS-ED appropriations for FY 2027; Continuing Resolution and Extensions Act 2025; American Jobs and Families Plans, (P.L. 117-2) all provisions dealing with human services and employment for people with disabilities. Health Issues: Funding for long-term supports and services workforce; Expanding access to health care; Supporting a comprehensive approach to health care; Creating supports and services for people with developmental disabilities across the lifespan; H.R.1520 - Charlotte Woodward Organ Transplant Discrimination Prevention Act. Labor Issues/Antitrust/Workplace: Disability community concerns regarding employment; Supporting the Direct Support Professional workforce; H.R.6137/ S.3211 - Recognizing the Role of Direct Support Professionals Act Medicare/Medicaid: PL 119-21 -the budget reconciliation laws changes to Medicaid; HCBS Access Act, a bill to increase access to Medicaid home and community-based services; HR 2082 Well-Being Insurance for Seniors to be at Home Act; Home Care Worker Protection Act; LTC Workforce Support Act - a bill to increase funding for HCBS and to provide workforce protections for workers in long term care settings; Work with CMS to implement Medicaid provisions in PL 119-21; Responding to a CMS request for information regarding waste, fraud, and abuse. Retirement: Improvements to Social Security Act Title II and Title XVI for people with disabilities; Supplemental Security Income program issues, provisions dealing with persons with disabilities; Social Security Disability program issues, provisions dealing with persons with disabilities; S.1234/H.R.2540 - SSI Savings Penalty Elimination Act; H.R.930 - Stop the Wait Act of 2025; H.R.1389 - Marriage Equality for Disabled Adults Act; S.627 - Ensuring Nationwide Access to Better Life Experience (ENABLE) Act; We Cant Wait Act (S.3924); SSI Restoration Act (S.4001/H.R.7828). Civil Rights/Civil Liberties: Deinstitutionalization and community integration; Disability rights in emergency situations; Ensuring accessible voting;(S.128/H.R.22)- SAVE Act; (H.R. 7296/S.3752)- SAVE America Act. Education: IDEA Funding; Medicaid in Schools; Changes and Restructuring of The U.S. Department of Education; Federal School Vouchers; (H.R. 6617/ S. 3448) Keeping All Students Safe Act; (H.R. 6052/S. 3121) 21st Century Dyslexia Act. Housing: Proposed HUD work requirements and term limits.

Government entities reported: HOUSE OF REPRESENTATIVES SENATE Centers For Medicare and Medicaid Services (CMS) Health & Human Services, Dept of (HHS) Labor, Dept of (DOL) Social Security Administration (SSA) Education, Dept of

Reported filing-period amount: $40,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

ARC OF THE UNITED STATES

Registrant: THE ARC OF THE UNITED STATES

4th Quarter (Oct 1 - Dec 31)
Jan 16, 2026

Reported lobbying issue

Budget/Appropriations: L-HHS-ED appropriations for FY 2026; Continuing Resolution and Extensions Act 2025; Ag-Rural Development-FDA appropriations for FY26, American Jobs and Families Plans, (P.L. 117-2) all provisions dealing with human services and employment for people with disabilities; Social Security Administration Limitation on Administrative Expenses (LAE); Health Issues: Funding for long-term supports and services workforce Expanding access to health care. Supporting a comprehensive approach to health care Creating supports and services for people with developmental disabilities across the lifespan. H.R.1520 - Charlotte Woodward Organ Transplant Discrimination Prevention Act Labor Issues/Antitrust/Workplace: Disability community concerns regarding employment Supporting the Direct Support Professional workforce Section 503 Regulations Apprenticeship Regulations Domestic worker protections Resources for individuals with disabilities returning to work Medicare/Medicaid: PL 119-21 -the budget reconciliation laws changes to Medicaid, Medicaid Access Act, a bill to increase access to Medicaid home and community-based services. HR 2082 Well-Being Insurance for Seniors to be at Home Act Home Care Worker Protection Act. LTC Workforce Support Act - a bill to increase funding for HCBS and to provide workforce protections for workers in long term care settings. Work with CMS to implement Medicaid work reporting requirements in PL 119-21 Retirement: Improvements to Social Security Act Title II and Title XVI for people with disabilities. Supplemental Security Income program issues, provisions dealing with persons with disabilities. Social Security Disability program issues, provisions dealing with persons with disabilities. S.1234/H.R.2540 - SSI Savings Penalty Elimination Act H.R.930 - Stop the Wait Act of 2025 H.R.1389 - Marriage Equality for Disabled Adults Act S.1023/H.R.2142 - Social Security Overpayment Relief Act S.627 - Ensuring Nationwide Access to Better Life Experience (ENABLE) Act ENABLE Civil Rights/Civil Liberties: Deinstitutionalization and community integration Disability rights in emergency situations Ensuring accessible voting Education: IDEA Funding Medicaid in Schools Changes and Restructuring of The U.S. Department of Education U.S. Department of Education grant cancellations Significant Disproportionality Data Collection Federal School Vouchers (H.R. 6617/S.3448) Keeping All Students Safe Act (H.R. 6052/S.3121) 21st Century Dyslexia Act Agriculture: Supplemental Nutrition Assistance Program (SNAP)

Government entities reported: Health & Human Services, Dept of (HHS) HOUSE OF REPRESENTATIVES Labor, Dept of (DOL) SENATE Centers For Medicare and Medicaid Services (CMS) Education, Dept of Social Security Administration (SSA)

Reported filing-period amount: $30,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

ARC OF THE UNITED STATES

Registrant: THE ARC OF THE UNITED STATES

3rd Quarter (July 1 - Sep 30)
Oct 17, 2025

Reported lobbying issue

Medicare/Medicaid: PL 119-21 -the budget reconciliation laws changes to Medicaid, Medicaid Access Act Bill to increase access to Medicaid home and community-based services. HR 2082 Well-Being Insurance for Seniors to be at Home Act Home Care Worker Protection Act. Labor Issues/Antitrust/Workplace: Disability community concerns regarding employment Supporting the Direct Support Professional workforce Paid Family and Medical Leave- FAMILY Act Section 503 Regulations Apprenticeship Regulations Budget/Appropriations: L-HHS-ED appropriations for FY 2026; Continuing Resolution and Extensions Act 2025; Ag-Rural Development-FDA appropriations for FY25 American Jobs and Families Plans, (P.L. 117-2) all provisions dealing with human services and employment for people with disabilities; Social Security Administration Limitation on Administrative Expenses (LAE); Health Issues: Funding for long-term supports and services workforce . Expanding access to health care. Supporting a comprehensive approach to health care Creating supports and services for people with developmental disabilities across the lifespan. H.R.1520 - Charlotte Woodward Organ Transplant Discrimination Prevention Act Retirement: Improvements to Social Security Act Title II and Title XVI for people with disabilities. Supplemental Security Income program issues, provisions dealing with persons with disabilities. Social Security Disability program issues, provisions dealing with persons with disabilities. S.1234/H.R.2540 - SSI Savings Penalty Elimination Act H.R.930 - Stop the Wait Act of 2025 H.R.1389 - Marriage Equality for Disabled Adults Act S.1023/H.R.2142 - Social Security Overpayment Relief Act S.627 - Ensuring Nationwide Access to Better Life Experience (ENABLE) Act ENABLE Civil Rights/Civil Liberties: Deinstitutionalization and community integration Disability rights in emergency situations Ensuring accessible voting Education: Restraint and Seclusion IDEA Funding Medicaid in Schools Changes and Restructuring of The U.S. Department of Education U.S. Department of Education grant cancellations Federal School Vouchers (S. 2819) Head Start for Americas Children Act (S. 2330/H.R. 5476) PARA Act (S. 2481) Pay Teachers Act Agriculture: Supplemental Nutrition Assistance Program (SNAP)

Government entities reported: Centers For Medicare and Medicaid Services (CMS) Health & Human Services, Dept of (HHS) HOUSE OF REPRESENTATIVES SENATE Education, Dept of Labor, Dept of (DOL) Social Security Administration (SSA)

Reported filing-period amount: $30,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

ARC OF THE UNITED STATES

Registrant: THE ARC OF THE UNITED STATES

2nd Quarter (Apr 1 - June 30)
Jul 18, 2025

Reported lobbying issue

Budget/Appropriations: L-HHS-ED appropriations for FY 2026; Continuing Resolution and Extensions Act 2025; Ag-Rural Development-FDA appropriations for FY25 American Jobs and Families Plans, (P.L. 117-2) all provisions dealing with human services and employment for people with disabilities; Social Security Administration Limitation on Administrative Expenses (LAE); Health Issues: Funding for long-term supports and services workforce. Expanding access to health care. Supporting a comprehensive approach to health equity and accountability Creating supports and services for people with developmental disabilities across the lifespan. H.R.1520 - Charlotte Woodward Organ Transplant Discrimination Prevention Act Labor Issues/Antitrust/Workplace: Disability community concerns regarding employment Healthy Families Act Proposed rule regarding a phase-out of 14 (c) subminimum wage Supporting the Direct Support Professional workforce Paid Family and Medical Leave - FAMILY Act Medicare/Medicaid: S. Con.Res.7 Budget resolution. An original concurrent resolution setting forth the congressional budget for the United States Government for fiscal year 2025 and setting forth the appropriate budgetary levels for fiscal years 2026 through 2034.Sponsor: Graham, Lindsey [Sen.-R-SC] H.Con.Res.14 - 119th Congress (2025-2026) Establishing the congressional budget for the United States Government for fiscal year 2025 and setting forth the appropriate budgetary levels for fiscal years 2026 through 2034.Sponsor: Arrington, Jodey C. [Rep.-R-TX-19] H.R.1 One Big Beautiful Bill Act - 119th Congress (2025-2026) This reconciliation bill includes legislation submitted by several congressional committees pursuant to provisions in the FY2025 congressional budget resolution (H Con. Res. 14) that directed the committees to submit legislation to the House or Senate Budget Committee that will increase or decrease the deficit and increase the statutory debt limit by specified amounts. Sponsor: Rep. Arrington, Jodey C. [R-TX-19] Retirement: Improvements to Social Security Act Title II and Title XVI for people with disabilities. Supplemental Security Income program issues, provisions dealing with persons with disabilities. Social Security Disability program issues, provisions dealing with persons with disabilities. S.1234/H.R.2540 - SSI Savings Penalty Elimination Act H.R.930 - Stop the Wait Act of 2025 H.R.1389 - Marriage Equality for Disabled Adults Act S.1023/H.R.2142 - Social Security Overpayment Relief Act S.627 - Ensuring Nationwide Access to Better Life Experience (ENABLE) Act ENABLE Civil Rights/Civil Liberties: Deinstitutionalization and community integration Disability rights in emergency situations Ensuring accessible voting Education: Restraint and Seclusion IDEA Funding Medicaid in Schools Changes and Restructuring of The U.S. Department of Education U.S. Department of Education grant cancellations Federal School Vouchers S. 292/H.R. 833- Educational Choice for Children Act H.R. 3265 Protecting Our Students in Schools Act H.R. 3939 RISE Act Agriculture: Supplemental Nutrition Assistance Program (SNAP)

Government entities reported: Health & Human Services, Dept of (HHS) HOUSE OF REPRESENTATIVES Labor, Dept of (DOL) SENATE Centers For Medicare and Medicaid Services (CMS) Education, Dept of

Reported filing-period amount: $90,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗

ARC OF THE UNITED STATES

Registrant: THE ARC OF THE UNITED STATES

1st Quarter (Jan 1 - Mar 31)
Apr 17, 2025

Reported lobbying issue

Budget/Appropriations: L-HHS-ED appropriations for FY 2025; Continuing Resolution and Extensions Act 2025; Ag-Rural Development-FDA appropriations for FY25 American Jobs and Families Plans, (P.L. 117-2) all provisions dealing with human services and employment for people with disabilities; Social Security Administration Limitation on Administrative Expenses (LAE); Health Issues: Funding for long-term supports and services workforce Expanding access to health care. Supporting a comprehensive approach to health equity and accountability H.R.1520 - Charlotte Woodward Organ Transplant Discrimination Prevention Act H.R. 6160- To amend the Public Health Service Act to reauthorize a lifespan respite care program S. 1227/H.R. 2491 Alleviating Barriers for Caregivers Act (ABC) S. 1398 FASD Respect Act S. 830/ H.R. 2560- Lifespan Respite Care Reauthorization Act Labor Issues/Antitrust/Workplace: Disability community concerns regarding employment Healthy Families Act Proposed rule regarding a phase-out of 14 (c) subminimum wage Supporting the Direct Support Professional workforce S.1332/H.R. 2941 - Recognizing the Role of Direct Support Professionals Act S. 437/H.R. 1002- Caring for All Families Act S. 3748/H. Medicare/Medicaid: S. Con.Res.7 Budget resolution. An original concurrent resolution setting forth the congressional budget for the United States Government for fiscal year 2025 and setting forth the appropriate budgetary levels for fiscal years 2026 through 2034.Sponsor: Graham, Lindsey [Sen.-R-SC] H.Con.Res.14 - 119th Congress (2025-2026) Establishing the congressional budget for the United States Government for fiscal year 2025 and setting forth the appropriate budgetary levels for fiscal years 2026 through 2034.Sponsor: Arrington, Jodey C. [Rep.-R-TX-19] Retirement: Improvements to Social Security Act Title II and Title XVI for people with disabilities. Supplemental Security Income program issues, provisions dealing with persons with disabilities. Social Security Disability program issues, provisions dealing with persons with disabilities. S.1234/H.R.2540 - SSI Savings Penalty Elimination Act H.R.930 - Stop the Wait Act of 2025 H.R.1389 - Marriage Equality for Disabled Adults Act S.1023/H.R.2142 - Social Security Overpayment Relief Act S.627 - Ensuring Nationwide Access to Better Life Experience (ENABLE) Act ENABLE Civil Rights/Civil Liberties: Deinstitutionalization and community integration Disability rights in emergency situations Ensuring accessible voting H.R. 22- SAVE Act Education: Restraint and Seclusion IDEA Funding Medicaid in Schools Changes and Restructuring of The U.S. Department of Education S.986/H.R. 1810- Safe Schools Improvement Act S. 745/H.R. 1570- Empowering Families in Special Education Act S. 292/H.R. 833- Educational Choice for Children Act H.R. 2333- Protecting Students with Disabilities Act Agriculture: Supplemental Nutrition Assistance Program (SNAP) Taxation/Internal Revenue Code: Child Tax Credit expansion

Government entities reported: Health & Human Services, Dept of (HHS) HOUSE OF REPRESENTATIVES Labor, Dept of (DOL) SENATE Centers For Medicare and Medicaid Services (CMS) Education, Dept of

Reported filing-period amount: $70,000

This is the amount reported for the filing/reporting period and should not be interpreted as money spent lobbying this bill alone.

View official LDA filing ↗
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